Join Dementia Research launches new campaign
Join Dementia Research is a UK wide service that hat matches people with dementia research studies they could take part in.
Earlier this Autumn, they launched a new video to encourage people of South Asian heritage to take part in dementia research.
In this video, researchers and members of the public speak about their experiences with dementia and why taking part in research is so important.
Barriers to participation
The video features Sania Rehman, Local Services Manager for Team Sahara at Alzheimer’s Society. She decided to take part rt in dementia research when both of her grandfathers were diagnosed with dementia.
She said: “When we are looking at dementia there are huge barriers in our community.
“The main reason is that there is no word for dementia in most South Asian languages. So, if there is no word for a condition, how can we expect people to understand it?
“We need more representation in dementia research. We cannot expect treatments, diagnosis and support to be inclusive if we don’t have the right people taking part in research.”
Find out more
You can watch the video by clicking the link below:
Anyone wanting to find out more about taking part in research can take a look at the Join Dementia Research website by clicking the link below:
