If you would like to know more about dementia or the latest research developments, here is a list of resources that might help
National sources of information about dementia
Age UK – a information hub dedicated to dementia information, including treatments, living well, adapting the home, getting support, planning the future and caring for someone else.
NHS – A comprehensive guide to dementia including symptoms, the diagnosis process, treatments, and day to day life with dementia.
Alzheimer’s Society – covers a wide range of dementia topics with advice on treatment, support options, daily living, and caring for someone with dementia.
Dementia UK – also has a broad range of information, from understanding the different types of dementia to legal and financial information.
Dementia Explained – a site run by Alzheimer’s Research UK which provides accessible information about dementia for three separate age groups: young kids, juniors and teens.
A Guide To Alzheimer’s Caregiving – tips on how to look after yourself as a carer and coping with burnout, applicable to all types of dementia.
Which? Dementia guides – a list of guides produced by the consumer organisation Which? on choosing the right care for someone with dementia.
Books on Prescription: Dementia – A recommended list of books you might find helpful if you have dementia, are caring for someone with dementia or would like to find out more about the condition.
Talking Sense – a book on how to live with sensory changes caused by dementia, freely available as a PDF
World class researchers are working to understand the complex diseases that cause Dementia, they are building upon more than 100 years of scientific discoveries to translate breakthroughs in the lab into more effective diagnosis, a better understanding of risk factors, and symptom mitigating treatments. Ultimately the goal is to find a cure.
Work is taking place to look at how to use to enable earlier and more accurate diagnosis and to investigate risk factors throughout life that contribute to the development of Dementia.
There are many research projects taking place across the UK to improve our understanding of how dementia develops. By taking part in these projects you can support these efforts to find a cure. You may even get the chance to try out cutting-edge treatments.
Dementia Oxfordshire works closely with researchers in Oxfordshire and we encourage people to take part in the studies that are taking place locally. If you are interested in taking part in a study, please speak with your Dementia Adviser.
To find out more about national research please visit the websites listed below:
Join Dementia Research – a partnership between national dementia charities and the government that allows you to sign up and receive information about research projects you might be suitable for. This is a national scheme so you can sign up wherever you live in the UK.
Donate to a brain bank – donating brain or spinal tissue can help researchers understand changes in the brain better among the healthy population vs someone with dementia. This webpage contains links to various brain banks around the country you can donate to.
Alzheimer’s Research Newsletter – sign up to receive regular updates about the latest dementia research funded by Alzheimer’s Research UK
Projects in Oxfordshire
Oxford Dementia and Ageing Research (OxDARE) – a partnership between Oxford Health NHS Trust and the University of Oxford bringing together diverse groups who are involved in dementia and ageing research across Oxford’s departments and institutes.
Oxford Drug Discovery Institute – a research institute run by Alzheimer’s Research UK which aims to accelerate the discovery of novel, effective therapeutics for Alzheimer’s disease and other neurodegenerative diseases.
Other support in the Oxfordshire area
Live Well Oxfordshire – A directory of support services across Oxfordshire for adults (18+), families and carers.